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Tomasz Grybek, MA

CEO
Foundation of Borys the Hero

Member of the Board of Directors of EURORDIS – Rare Diseases Europe. CEO of a patient organization called Foundation of Borys the Hero focused on strategic advisory for public entities. Member representing patients' organizations nominated by the European Commission to the Paediatric Committee of the European Medicines Agency (EMA PDCO).

Patient Advocate involved as an e-PAG Member of ERN-ITHACA and Patient Board Member of MetabERN. Cooperates closely with the Rare Disease Centre of Medical University in Gdansk.

He is a father of a child living with rare neurological disease.

Disclosure information not submitted.

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